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Patients Included

We are proud to confirm that ISQua’s 35th International Conference has achieved Patients Included status.

The Patients Included charter provides conference organisers with a means of demonstrating that their events are committed to incorporating the experience of patients, who are experts in living with their condition while ensuring they are neither excluded nor exploited.

For more information on Patients Included, please visit the website.

Patients Included status is self-assessed and self-monitored. A Patients Included status signifies that the event has satisfied all five criteria as identified in the Patients Included charter:

1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers. 

ISQua’s 35th International Conference will run from 23rd to 26th September 2018 in the Kuala Lumpur Convention Centre, Kuala Lumpur, Malaysia.

As part of the planning process, the Programme and Planning Committee (PPC) contributed to the discussions regarding the theme, tracks and potential plenary speakers for the conference. Members of the PPC include a patient advocate representative (Manvir Jesudasan, Malaysia) from our partner organisation, the Malaysian Society for Quality in Health (MSQH).

The PPC have actively worked towards encouraging patient and patient representatives to attend the conference as well as being involved within the conference. This was done by utilising the patient experience of our Person-Centred Care Community of Practice (https://isqua.org/interest-groups/communities-of-practice/person-centred-care-community-of-practice). The Community brings together patient representatives, advocates and practitioners with an interest in person centred care, to discuss issues affecting care and quality of service.

From this they developed a patient specific track (The Person) and have made suggestions for the programme that will be of interest to patients. The PPC also ensures that we have patient speakers involved in as many sessions as possible.

2. Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience. 

Through the patient representative that we have on the PPC, we have developed a track called ‘The Person’ which we have included throughout the programme to encourage other patients to take part in and attend the conference. This track includes sessions on Integrated Care, Patient Experience, Patient Engagement, the Patient Voice, Patient/Person Centred Care, Looking after Healthcare Providers, and the "Second Victim" (in the case of Patient Safety Incidents).

We stated in our submission guidelines that priority will be given to sessions which can show patient collaboration. When reviewing the submissions for our 30 and 45-minute sessions we give preference to submissions that include patient collaborations. This has resulted in a record number of patient & care related submissions for ISQua, many of which include a patient being actively involved in the session.

One of our key sessions is the viewing of the movie ‘Falling Through the Cracks’ (Trailer at http://gregswings.ca/fttc-trailer/) followed by a discussion of key messages from the film and interventions to improve continuity of care.

We offer a discounted speaker registration rate to anyone involved in the longer sessions, including many patients and caregivers in this.

3. Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance. Scholarships are provided by the conference organisers to allow patients or carers affected by the relevant issues to attend as delegates. 

ISQua will organise and fully paid for the travel and accommodation for our main patient representatives, Sara Yaron and Manvir Jesudasan.

We launched our inaugural Patient Inclusion Scholarship for conference attendance (https://isqua.org/Events/malaysia-2018/Scholarships_and_Awards) in June 2018. This scholarship offers free registration and €500 towards the cost of flights & accommodation. The scholarship was open to patients, patient advocates and caregivers. To date, ten scholarships have been provided.

4. The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates. 

ISQua’s conference will be held in the Kuala Lumpur Convention Centre in Kuala Lumpur, Malaysia. All sessions will be open to all delegates wishing to attend.

The Kuala Lumpur Convention Centre is accessible to all physically-challenged guests.

The Kuala Lumpur Convention Centre has automatic doors at all its entrances. Shallow grade ramps provide direct access from road level. All function rooms have double-leaf doors to facilitate wheelchair entry. All levels are serviced by elevators which are fitted with low-level tactile floor buttons, aural and visual indicators and wide door access.

All public areas are accessible to wheelchair users. A wheelchair platform lift is available for the Plenary Theatre and Plenary Hall stages and designated chairs in both venues can be removed to accommodate wheelchairs. Doors 1 & 6 at Level 1 of the Plenary Hall are ramped for wheelchair access.

The Kuala Lumpur Convention Centre has wheelchair accessible toilets adjacent to the public toilets on every level.

5. Access for virtual participants is facilitated, with free streaming video provided online wherever possible. 

The ISQua Conference plenary sessions will be live streamed through the ISQua website (www.isqua.org) free of charge for delegates who may not be able to attend the conference. This will be advertised and promoted through our social media, using the hashtag #ISQua2018 and through our mobile App, using notifications.

After the event the presentation recordings, PowerPoint presentations and e-posters will be available to all delegates and ISQua Members online.